Despite our greatest wishes, there is no cure for Muscular Dystrophy. If only there was a miraculous medicine that could reverse the effects of this progressive muscle wasting disease, a potion to take away the aches and hardships those with MD experience.
Why are we talking about this?
Throughout our time on forums, Facebook groups and discussions we’ve had on our individual social media platforms, it’s apparent that there are individuals purporting to have alternative treatments for Muscular Dystrophy.
People without any medical training who’ve read excerpts of medical journals, newspaper clippings, and biological studies of both humans and animals, who claim to have discovered a magical combination of vitamins, supplements and other natural compounds scholars have somehow overlooked.
Claims like this can be harmful to those who are desperate for a remedy, whilst serving the purpose of lining the pockets of opportunists.
We’ve seen claims that adhering to special diets will result in a swift recovery, that MD is not a case of genetics but poor nutrition. These statements only serve to make mothers and fathers feel guilty for bringing children with disabilities into the word.
Frankly, it’s ridiculous!
We of course support healthy eating. It’s good for all of us with plenty of physical and mental benefits. We’ve all felt sluggish after periods of poor eating, the eating habits of many of us during this pandemic has made this all the more apparent.
Hydration and good nutrition will make all of us feel better and decent vitamin intake is always a plus.
We would urge you not to take the information you see online at face value, and ask you to remember that having a medical degree doesn’t make someone instantly knowledgeable on all medical conditions. Medicine is a vast field with many specialisms, it would be impossible for one to know all there is.
We’d like to make clear that this post is not critical of those who take dietary supplements and vitamins, there is solid research on their benefits and it would be foolish of us not to acknowledge this. However, we don’t care much for those who sell such things under the false assurance that these will cure or reverse Muscular Dystrophy.
The Sons of Dystrophy don’t seek to give you medical advice, we aren’t medically trained (a lot like the people we’re warning of) but we’ll always openly discuss our experiences. We just want to make sure you aren’t put at a physical, emotional or financial loss by the opportunists of the world.
Please speak to your specialist if you have one or reach out to the various Muscular Dystrophy charities for guidance, they are there to help and are very approachable, you’ll find links to them below.
The Muscular Dystrophy charities are there to guide you and will certainly do more for you than the guy on Facebook with magic beans. You’ll find links to the charities below.
Please stay safe online.