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Looking Back: January 2021

February 13, 2021February 13, 2021 by dystrophydad

I've never kept a diary, I mean I've tried, but I always find myself writing it for the reader, who'd ideally be no one, weird right? So I thought I'd try again but this time as monthly blog. I'm writing this as much for you as for myself, and with the way 2020 was, I'd … Continue reading Looking Back: January 2021

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Double Ableism and Small Fries

January 27, 2021January 27, 2021 by dystrophydad

This week, a close friend of mine who runs the Casual Ableism Instagram and Facebook page received a comment on a post from another disabled person, asking if their page was satire. This was the original post: An important message I thought. I've been a follower of the page for some time. I admire how … Continue reading Double Ableism and Small Fries

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Not Disabled Enough

January 16, 2021January 16, 2021 by dystrophydad

You see that title? Pretty strange thing to write about and explore but let's do it. As you'll likely know, I have Becker Muscular Dystrophy, a progressive muscle wasting condition that gets worse over time. I've known about it all my life, and I live with the knowledge that one day I'll lose the ability … Continue reading Not Disabled Enough

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Smile for the camera

January 10, 2021January 11, 2021 by dystrophydad

There's no delicate way to put this, I started 2021 with a colonoscopy. It's an experience I'd never had, and hopefully won't need for a while, but it was not as terrible as I'd thought. Two weeks before Christmas, I went to the toilet, wiped, and saw red. Lots of it. Like a silly amount … Continue reading Smile for the camera

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Not a Warrior

January 3, 2021January 4, 2021 by dystrophydad

Another Facebook group inspired post? I know, I know but with things being as they are, most of my interaction with the world is digital. So I'm seeing a trend within the MD community, and others, where people are referred to as warriors. Sometimes it's an attempt at instilling a sense of self-worth, sometimes it's … Continue reading Not a Warrior

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Christmassy Dad

December 6, 2020December 7, 2020 by dystrophydad

I've been working on a post for the last week or so that hasn't quite come together just yet. While I'm putting the pieces together, I thought I'd put together another music post!This time we're talking Christmas songs. Just as I did in Dystrophy Dad Volume one, I'll link to the songs on Youtube and … Continue reading Christmassy Dad

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Parasites and Panaceas

November 22, 2020November 22, 2020 by dystrophydad

Recently I've seen a lot of this popping up on my Instagram posts. I know it's cheeky, but I can't stand to see members of our amazing community being taken advantage of. I'm not here to denounce herbal medicine, that would be ignorant of me. I have no doubt that many plants, roots and herbs … Continue reading Parasites and Panaceas

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Wellbeing at work.

October 29, 2020October 29, 2020 by dystrophydad

I have depression. Three words. Five syllables. Simple to say. Hard to accept. Why am I talking about this? So you can too. I'm sick of the stigma, sick of the 'man-ups', sick of people not being able to just talk about how they feel for fear of judgement. We're living in pandemic, people are … Continue reading Wellbeing at work.

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Dystrophy Dad Vol.1

October 22, 2020October 22, 2020 by dystrophydad

You ever have one of those months where you can't get your head together? That's me right now. I've been doing a lot of work with Sons Of Dystrophy, so much so that I've not been able to focus on my own writing. I'm also in the middle of a substantial amount of muscle pain … Continue reading Dystrophy Dad Vol.1

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Worst. Drive-Thru. Ever

October 1, 2020October 1, 2020 by dystrophydad

I woke up on Tuesday morning feeling unwell. It started with a cough, deep aches that I genuinely felt through my bones, chills and a tightness in my chest. I sat with it for a while, and suddenly started to remember everywhere I'd been since lockdown was lifted. Several coffee shops, several supermarkets, two restaurants … Continue reading Worst. Drive-Thru. Ever

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  • Looking Back: January 2021
  • Double Ableism and Small Fries
  • Not Disabled Enough
  • Smile for the camera
  • Not a Warrior

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