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Not Disabled Enough

January 16, 2021January 16, 2021 by dystrophydad

You see that title? Pretty strange thing to write about and explore but let's do it. As you'll likely know, I have Becker Muscular Dystrophy, a progressive muscle wasting condition that gets worse over time. I've known about it all my life, and I live with the knowledge that one day I'll lose the ability … Continue reading Not Disabled Enough

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Smile for the camera

January 10, 2021January 11, 2021 by dystrophydad

There's no delicate way to put this, I started 2021 with a colonoscopy. It's an experience I'd never had, and hopefully won't need for a while, but it was not as terrible as I'd thought. Two weeks before Christmas, I went to the toilet, wiped, and saw red. Lots of it. Like a silly amount … Continue reading Smile for the camera

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Not a Warrior

January 3, 2021January 4, 2021 by dystrophydad

Another Facebook group inspired post? I know, I know but with things being as they are, most of my interaction with the world is digital. So I'm seeing a trend within the MD community, and others, where people are referred to as warriors. Sometimes it's an attempt at instilling a sense of self-worth, sometimes it's … Continue reading Not a Warrior

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Christmassy Dad

December 6, 2020December 7, 2020 by dystrophydad

I've been working on a post for the last week or so that hasn't quite come together just yet. While I'm putting the pieces together, I thought I'd put together another music post!This time we're talking Christmas songs. Just as I did in Dystrophy Dad Volume one, I'll link to the songs on Youtube and … Continue reading Christmassy Dad

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Parasites and Panaceas

November 22, 2020November 22, 2020 by dystrophydad

Recently I've seen a lot of this popping up on my Instagram posts. I know it's cheeky, but I can't stand to see members of our amazing community being taken advantage of. I'm not here to denounce herbal medicine, that would be ignorant of me. I have no doubt that many plants, roots and herbs … Continue reading Parasites and Panaceas

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Wellbeing at work.

October 29, 2020October 29, 2020 by dystrophydad

I have depression. Three words. Five syllables. Simple to say. Hard to accept. Why am I talking about this? So you can too. I'm sick of the stigma, sick of the 'man-ups', sick of people not being able to just talk about how they feel for fear of judgement. We're living in pandemic, people are … Continue reading Wellbeing at work.

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Dystrophy Dad Vol.1

October 22, 2020October 22, 2020 by dystrophydad

You ever have one of those months where you can't get your head together? That's me right now. I've been doing a lot of work with Sons Of Dystrophy, so much so that I've not been able to focus on my own writing. I'm also in the middle of a substantial amount of muscle pain … Continue reading Dystrophy Dad Vol.1

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Worst. Drive-Thru. Ever

October 1, 2020October 1, 2020 by dystrophydad

I woke up on Tuesday morning feeling unwell. It started with a cough, deep aches that I genuinely felt through my bones, chills and a tightness in my chest. I sat with it for a while, and suddenly started to remember everywhere I'd been since lockdown was lifted. Several coffee shops, several supermarkets, two restaurants … Continue reading Worst. Drive-Thru. Ever

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Why I love Roald Dahl

September 17, 2020September 17, 2020 by dystrophydad

Whilst I'm sure I was introduced to the magical worlds of Roald Dahl's books much earlier, the most vivid memory I have is of reading a short booklet named Roald Dahl's Guide to Railway Safety. How I came to acquire this book, I can't rightly say. In all likelihood my dad brought it home but the … Continue reading Why I love Roald Dahl

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Laughing at people in wheelchairs

September 10, 2020September 12, 2020 by dystrophydad

On a day out with Tracy and the wee one I decided to try out my wheelchair on a ramp at the skate park. I've got the Quickee Argon 2, it's neon green and pretty sporty, so I thought why the hell not?Yeah... It didn't turn out well. My tiny front wheels couldn't handle the … Continue reading Laughing at people in wheelchairs

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