You see that title? Pretty strange thing to write about and explore but let's do it. As you'll likely know, I have Becker Muscular Dystrophy, a progressive muscle wasting condition that gets worse over time. I've known about it all my life, and I live with the knowledge that one day I'll lose the ability … Continue reading Not Disabled Enough
There's no delicate way to put this, I started 2021 with a colonoscopy. It's an experience I'd never had, and hopefully won't need for a while, but it was not as terrible as I'd thought. Two weeks before Christmas, I went to the toilet, wiped, and saw red. Lots of it. Like a silly amount … Continue reading Smile for the camera
Another Facebook group inspired post? I know, I know but with things being as they are, most of my interaction with the world is digital. So I'm seeing a trend within the MD community, and others, where people are referred to as warriors. Sometimes it's an attempt at instilling a sense of self-worth, sometimes it's … Continue reading Not a Warrior
I've been working on a post for the last week or so that hasn't quite come together just yet. While I'm putting the pieces together, I thought I'd put together another music post!This time we're talking Christmas songs. Just as I did in Dystrophy Dad Volume one, I'll link to the songs on Youtube and … Continue reading Christmassy Dad
Recently I've seen a lot of this popping up on my Instagram posts. I know it's cheeky, but I can't stand to see members of our amazing community being taken advantage of. I'm not here to denounce herbal medicine, that would be ignorant of me. I have no doubt that many plants, roots and herbs … Continue reading Parasites and Panaceas
I have depression. Three words. Five syllables. Simple to say. Hard to accept. Why am I talking about this? So you can too. I'm sick of the stigma, sick of the 'man-ups', sick of people not being able to just talk about how they feel for fear of judgement. We're living in pandemic, people are … Continue reading Wellbeing at work.
You ever have one of those months where you can't get your head together? That's me right now. I've been doing a lot of work with Sons Of Dystrophy, so much so that I've not been able to focus on my own writing. I'm also in the middle of a substantial amount of muscle pain … Continue reading Dystrophy Dad Vol.1
I woke up on Tuesday morning feeling unwell. It started with a cough, deep aches that I genuinely felt through my bones, chills and a tightness in my chest. I sat with it for a while, and suddenly started to remember everywhere I'd been since lockdown was lifted. Several coffee shops, several supermarkets, two restaurants … Continue reading Worst. Drive-Thru. Ever
Whilst I'm sure I was introduced to the magical worlds of Roald Dahl's books much earlier, the most vivid memory I have is of reading a short booklet named Roald Dahl's Guide to Railway Safety. How I came to acquire this book, I can't rightly say. In all likelihood my dad brought it home but the … Continue reading Why I love Roald Dahl
On a day out with Tracy and the wee one I decided to try out my wheelchair on a ramp at the skate park. I've got the Quickee Argon 2, it's neon green and pretty sporty, so I thought why the hell not?Yeah... It didn't turn out well. My tiny front wheels couldn't handle the … Continue reading Laughing at people in wheelchairs
