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Author: dystrophydad

I'm a 35 year old father of one with Becker's Muscular Dystrophy, Follow me for articles and poems on disability and mental health. Please follow me on Facebook, Instagram and Twitter @Dystrophydad for more content.

Dystrophy Dad Vol.1

October 22, 2020October 22, 2020 by dystrophydad

You ever have one of those months where you can't get your head together? That's me right now. I've been doing a lot of work with Sons Of Dystrophy, so much so that I've not been able to focus on my own writing. I'm also in the middle of a substantial amount of muscle pain … Continue reading Dystrophy Dad Vol.1

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Worst. Drive-Thru. Ever

October 1, 2020October 1, 2020 by dystrophydad

I woke up on Tuesday morning feeling unwell. It started with a cough, deep aches that I genuinely felt through my bones, chills and a tightness in my chest. I sat with it for a while, and suddenly started to remember everywhere I'd been since lockdown was lifted. Several coffee shops, several supermarkets, two restaurants … Continue reading Worst. Drive-Thru. Ever

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Why I love Roald Dahl

September 17, 2020September 17, 2020 by dystrophydad

Whilst I'm sure I was introduced to the magical worlds of Roald Dahl's books much earlier, the most vivid memory I have is of reading a short booklet named Roald Dahl's Guide to Railway Safety. How I came to acquire this book, I can't rightly say. In all likelihood my dad brought it home but the … Continue reading Why I love Roald Dahl

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Laughing at people in wheelchairs

September 10, 2020September 12, 2020 by dystrophydad

On a day out with Tracy and the wee one I decided to try out my wheelchair on a ramp at the skate park. I've got the Quickee Argon 2, it's neon green and pretty sporty, so I thought why the hell not?Yeah... It didn't turn out well. My tiny front wheels couldn't handle the … Continue reading Laughing at people in wheelchairs

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Don’t Feed The Trolls

August 18, 2020August 18, 2020 by dystrophydad

As bloggers, it's a truth that we share parts of our lives with those who follow us and read our blogs. It's a sacrifice many of us chose to make as we appreciate the value of communication and how we help our communities by sharing our stories and experiences. This is our choice, and similarly … Continue reading Don’t Feed The Trolls

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Contentment

August 13, 2020August 13, 2020 by dystrophydad

On Sunday I had Tracy's family round for a barbecue. It was a bit of a last minute affair with hasty phone calls to invite them over but they were glad to come. We made a desperate dash to Morrisons and picked up burgers, wings and hotdogs, came home and the wife did the prep … Continue reading Contentment

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Dare to Be Remarkable – Simply Emma

July 31, 2020July 31, 2020 by dystrophydad

We've reached the end of our five week series, MD at the movies. So to go out in style, Simply Emma and I are doing things a little different. The below is a guest post from Emma. If you'd like to read my thoughts on Dare to Be Remarkable - please click HERE. Despite there … Continue reading Dare to Be Remarkable – Simply Emma

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Stuart: A Life Backwards

July 17, 2020July 19, 2020 by dystrophydad

Welcome to week three of MD AT THE MOVIES! This week we're covering Stuart: A Life Backwards, a 2007 film starring Benedict Cumberbatch and Tom Hardy as Alexander Master and Stuart Shorter respectively. This is also our first film that's based on a true story. If you've just joined us, please check out our previous … Continue reading Stuart: A Life Backwards

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Inside I’m Dancing

July 3, 2020July 11, 2020 by dystrophydad

Welcome to week one of MD at the Movies, where Emma of SimplyEmma and I will be sharing our thoughts on five films starring a character with Muscular Dystrophy. Posts will alternate between us both, so please make sure to bookmark Emma's site so you don't miss out. This week we're discussing Inside I'm Dancing, … Continue reading Inside I’m Dancing

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Spectrum

June 25, 2020June 25, 2020 by dystrophydad

Have you ever had one of those weeks where it feels the universe is leading you down a path? That's what this week has been like. I can't recall exactly how I stumbled upon this story, whether it was second hand on social media, or as a direct result of the BBC News article, but … Continue reading Spectrum

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