As bloggers, it's a truth that we share parts of our lives with those who follow us and read our blogs. It's a sacrifice many of us chose to make as we appreciate the value of communication and how we help our communities by sharing our stories and experiences. This is our choice, and similarly … Continue reading Don’t Feed The Trolls
Author: dystrophydad
Contentment
On Sunday I had Tracy's family round for a barbecue. It was a bit of a last minute affair with hasty phone calls to invite them over but they were glad to come. We made a desperate dash to Morrisons and picked up burgers, wings and hotdogs, came home and the wife did the prep … Continue reading Contentment
Dare to Be Remarkable – Simply Emma
We've reached the end of our five week series, MD at the movies. So to go out in style, Simply Emma and I are doing things a little different. The below is a guest post from Emma. If you'd like to read my thoughts on Dare to Be Remarkable - please click HERE. Despite there … Continue reading Dare to Be Remarkable – Simply Emma
Stuart: A Life Backwards
Welcome to week three of MD AT THE MOVIES! This week we're covering Stuart: A Life Backwards, a 2007 film starring Benedict Cumberbatch and Tom Hardy as Alexander Master and Stuart Shorter respectively. This is also our first film that's based on a true story. If you've just joined us, please check out our previous … Continue reading Stuart: A Life Backwards
Inside I’m Dancing
Welcome to week one of MD at the Movies, where Emma of SimplyEmma and I will be sharing our thoughts on five films starring a character with Muscular Dystrophy. Posts will alternate between us both, so please make sure to bookmark Emma's site so you don't miss out. This week we're discussing Inside I'm Dancing, … Continue reading Inside I’m Dancing
Spectrum
Have you ever had one of those weeks where it feels the universe is leading you down a path? That's what this week has been like. I can't recall exactly how I stumbled upon this story, whether it was second hand on social media, or as a direct result of the BBC News article, but … Continue reading Spectrum
Shields down
This last week has been pretty hard going. My legs have been increasingly unreliable, they’ve been giving out from under me and I’ve been achy, to the point I’ve had to drag myself upstairs to bed. As Becker’s is progressive, I constantly have to adapt to the growing changes and limitations it imposes on me. … Continue reading Shields down
The Digital Drugstore
The three members of Sons of Dystrophy, Clay, Joe and Brad have seen a rise in posts about remedies for Muscular Dystrophy. We aren't medically trained, neither are these opportunists, but you can be sure that we'll share the truth and be honest about our experiences as men with Muscular Dystrophy. Please read our collaborative blog on this subject and stay safe!
The Line
Try as I might to be optimistic, I can't deny that living with Muscular Dystrophy is bloody hard. The weakness, the random pains, my knees giving out without warning, I've just about learned to live with that. In my mind is where he real battle is fought. I often get this crazy notion to run, … Continue reading The Line
Workin’ 9 to 5, in the kitchen, in my PJs.
I worked from home before it was cool/mandatory and it had unexpected effects on my mental health. Read more one my latest blog post!